Friday, April 18, 2014

Sarcoma Help – A Primer for Patients, Friends and Family

Chances are if you are here you have received the news that you have Sarcoma.  Right off the bat you need to know what it is and below are several links that are very informative.  I’m posting them right up front because most people here looking at this post are scared to death and need the info right away.  After you have checked out the links come back because what follows is an open, honest journey of one mans experience with liposarcoma.

Cancer is a scary word but it is just a word.  There are over fifty varieties of sarcoma some are down right nasty others like liposarcoma have a low rate of recurrence if properly removed by a sarcoma specialist.  Your local general surgeon does not have the experience in treating the disease.  Getting to a sarcoma center is imperative in lowering your risk for recurrence.

You should know Sarcoma doesn’t act like a typical carcinoma and if you are looking for a little good news chemotherapy is useless in treating Sarcoma.  Sarcoma is treated with surgery to cut the bad cells out.  Cancer/Sarcoma are just cells that have been infected by viruses or chemical exposure to the point where their basic normal function is damaged and they do not know how to shut themselves off.  We have millions of cells dying off and recreating in our body every day from hair growth to bone regeneration our cells are constantly dying off and regenerating.  When they can’t go through their normal life-cycle and die off its up to modern medicine to intervene and surgically remove them and or kill them off with radiation or dose them with chemotherapy.  These are all harsh treatments but undying cells creating massive tumors interfering with your bodies normal functioning organs by their invasion or malignancy is worse.

That’s is all a tumor is that’s why if you catch the disease early enough you can scoop the offending cells out before they spread and do serious damage to your lungs, liver, pancreas, kidney or brain.

Here are the links – get up to speed – if you want to fell better read them – they’ll answer a lot of questions for you – knowledge is power.  And then come back and read my daily journal it will help in knowing what you or a loved one is about to confront.  The journal will be posted sequentially on the front page and under the heading Sarcoma.  Good luck!  With the proper care cancer is not what it used to be ( a death sentence) most cancers these days are highly curative.  There are a lot of people doing a lot of good work in this field.  There is even a dye in clinical trials that will illuminate the cancerous cells for the doctors to see.  Its only in phase one of it’s clinical trials but it would be a game changer if proven affective.


1 comment:

Paul Burke said...

Go back to the home page (link below) for all the Sarcoma Journal Entries.