Friday, April 18, 2014

Sarcoma Treatment Journal Entry Nine

Well its been a whirlwind trip but Kris and I are back home now. Most of you we have talked to one on one and I’m a little out of gas right now so its going to just be a short hello. There was a range of options from worst case scenario to best case scenario and in the surgeons own words – we got the best case scenario. Pathology taken during surgery showed negative margins. We are awaiting more in depth pathology results from the lab to come in next week. Negative margins are good. You do not want positive margins that means they found cancer cells. I was in surgery for two and a half hours and then the plastic guys closed me up in a half hour – three hours total! One surgeon said point blank we did not find any cancer….so I said “keep on truckin” and he smiled and said keep on trukin – it was a moment at 6am with just me and him in the room. Thanks Patrick I’ve got the scar to prove you looked.

We are fine, in our happy home. Kris is taking great care of me and that can not be overstated. The sun is shinning the birds are singing and as soon as I can get behind the wheel of a car I’m headed for the boardwalk. I’ve already ditched the walker they sent me home with and I am using a cane quite dapper in my pajama pants and black cane with gold trim. I also got one of those tall commodes – you know “toilet on a stand” and ditched that thing. I loved it the first few days in the hospital – its a long way down with a scar in your abdomen but they are really confining, They slap your legs together and leave no room for Mr. Happy definitely not what I’m used too and shortly thereafter that thing was hauled out of the powder room in an act of defiance and everything cut loose after that.

Speaking of cutting loose the hardest part for me is taking it easy – it was major surgery so I have to force myself to hit the sofa and lay down – fortunately there is Oxycodone for that……space the final frontier. Twilightzone dreams and the space time continuum has been shattered, Next week we go back to Duke to have stitches and the blood bag removed. I’m carrying a drainage pouch around with me. Its fun dragging your bodily fluids around – especially when all the chords get tangled up as your hospital gown gets caught in something. I do not miss my catheter. Great, great care from the Duke team but there were a few fumbles a long the way – you have to be your own patient advocate people – hospitals are health care factories. But great people doing great work gets overrun by the crush of business and lack of time. Nurses need more pay!!!

Thank you one and all for thinking, praying and meditating on us….

Paul

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